Emmalyn's Journey: 55 Surgeries, a Stolen Childhood, and a Hope for Healing


At the tender age of three, Emmalyn Freeze embarked on a journey that would challenge the bounds of courage and resilience. What began with a small incision marked the start of a life entwined with the sterile halls of hospitals, the hum of surgical lights, and a succession of diagnoses that have come to define much of her young life. From Chiari malformation to a series of complex conditions—Adhesive Arachnoiditis, Ehlers-Danlos Syndrome, Tethered Cord Syndrome, and more—Emmalyn has faced challenges far beyond the imaginings of most.

Fifty-five surgeries have left their mark upon her, each scar a silent testament to her strength, each procedure a battle fought in the hope of finding relief. Emmalyn’s days have been shaped by the rhythms of medical intervention—birthdays and holidays often marked by hospital stays, with moments of childhood joy punctuated by the realities of her condition.

Yet, amidst the relentless challenges, Emmalyn and her family have faced an undeniable truth: the journey is not towards a cure, but a quest for comfort and quality of life. With the wise counsel of her surgeon, Dr. Grant, the focus has shifted towards managing her conditions, particularly the delicate balance of pressure within her spinal canal. The aim now is to mitigate the risks of further spinal fluid leaks and the growth of Syrinx, which could necessitate additional surgeries.

The presence of shunts in both her lumbar and head regions is a constant reminder of the precarious equilibrium within Emmalyn’s body—an equilibrium threatened by scar tissue and the complexities of her internal landscape.

In this reality, hope takes on a different hue. It is not the hope for a cure, but the hope for moments of joy amidst the pain, for strength in the face of relentless challenges, and for the comfort of knowing that every effort is being made to improve Emmalyn’s quality of life. It is a hope that is deeply human, touching the core of our shared experience, and rallying a community of support around Emmalyn and her family.

Emmalyn’s Journey has thus transformed into a beacon of awareness, a call to arms for those moved by her story, and a plea for support—not just financial, but in compassion, understanding, and the sharing of her story to inspire others.

We invite you to join us on this journey—a journey not towards a destination, but a path walked together, supporting Emmalyn in every step, every challenge, and every moment of joy. Your contributions, your shares, and your support light the way for Emmalyn and her family, offering comfort, hope, and the promise of better days.

In the face of a future that holds more surgeries and medical interventions, we stand united in our support for Emmalyn, driven by love, hope, and the unwavering spirit of a brave young girl who continues to fight, to smile, and to inspire us all.

Together, let’s surround Emmalyn with the strength of our community, offering her the comfort and care she deserves. Donate, share, and join us in this heartfelt mission to make each day brighter for Emmalyn, as she navigates the complexities of her condition with unparalleled bravery and grace.

Ways You Can Donate

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Venmo – @Stephanie-Freeze

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Cashiers Check or Money Order

Please send your check or money order to: Stephanie Freeze P.O. Box 83 Mt Morris, IL 61054